Tyler’s Hope for a Dystonia Cure Nears Ultimate Goal
Imagine a child wrought with pain and unable to walk.
Thanks to donations and years of research that same little girl can now walk up on a stage and tell you about her youth volleyball games.
Rick Staab doesn’t have to imagine because it is a true story for his family. It is just a snapshot into how Tyler’s Hope for a Dystonia Cure has changed his life and that of his daughter. The foundation he created to find a cure for the disorder is named after his son, Tyler, who also suffers from Dystonia.
Now, imagine being able to find a cure and end the pain and suffering of people around the world struck with dystonia. Staab is doing more than just imaging it. He is making it happen and expects a cure to be found within the next five years.
A team of doctors and researchers are closing in a on a cure and a new 10 for 10 program plays a huge part in Staab’s vision for making that a cure a reality. The 10 for 10 program will help fund the “Alignment Grant” team of experts at Duke University, the University of Michigan and the University of Florida pursue a pharma that would eliminate the symptoms of dystonia.
The program will be kicked off at the 10 year anniversary of The Hope Weekend, a unique fundraising event held in Gainesville, Florida, every summer that includes a VIP party, gala dinner, auction, concerts, golf tournament and a family-friendly pool party. This year The Hope Weekend is being held August 6-8 at the Gainesville Country Club.
Established 10 years ago, The Hope has continually grown and brought new and exciting things each year, thanks to our amazing sponsors and friends! All proceeds go directly toward research in finding a cure for Dystonia!
The 10 for 10 program asks donors for a $10,000 commitment to Tyler’s Hope before the end of 2016.
“We are asking for our supporters to step up their commitment level so that we can cure this disorder in the next five years,” said Jacob Wychulis, Cure Master with Tyler’s Hope. “It is only a matter of time and money before we find the cure, the more money we raise the faster we will reach the cure.”
“We have to fund this,” Wychulis said about the Alignment Grant. “This could be the cure and it could happen in the next two to five years.”
The Hope Weekend has something for everyone and will be bigger and better than ever in 2015.
For more information, visit TylersHope.org or email info@TylersHope.org.
